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Counting our Coins

January 4, 2013

We like the textures of the metal coins and the engraved images and words. We like to count our coins too. It is a stress relieving activity. We used to do this more often when we were younger. It is/was one of several self-stimulating behaviors we have.

Now we don’t really do it because it puts us into a certain kind of relaxed state that also decreases external awareness by a lot. So we can’t do other things for a while afterwards. Even when we have lots of time it doesn’t cross our minds to play with our count coins much anymore. Perhaps it has served its purpose in our lives. We aren’t sure.

Athena with some input from Andrea.

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Reblogged from A Strongheart Moment

December 29, 2012

Please donate to the Leeshore Center. And reblog the original post to spread the word. Thanks!

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Brief Update from all of us

December 27, 2012

Sorry we haven’t posted anything new after a stretch of fairly regular posting. It is not for lack of desire or lack of anything to say. During the end of semester craziness we were unable to finish a bunch of drafts and schedule them a few days apart to avoid the long lapse. We tried for a while but we could only cover a few weeks. After we came home, naturally (for us) it was family time. We aren’t sure when we will be able to start posting on a semi-regular basis again.

Take care and thanks for visiting/following our blog.

Andrea for all of us

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Feeling Intruded Upon

December 19, 2012

Why the hell do people always think that even when I seem to be sitting around doing nothing, I might be far away in my mind-fortress and not want to interact(even to respond to a request to do something) or be disturbed? The following is just one example one of us came up with(possibly Athena; she likes watching insects. That says NOTHING whatsoever about her “functioning level”, by the way. So “I” refers to Athena. She wrote this draft many months ago, like most of our recently published entries) While I was observing some insects going about their business, my mother asked me to hang up the laundry. Okay, forgiven. She doesn’t know that I drift away somewhere else, because I have never really told her, so she has no way to know. I have intentionally not told her or anyone else in my family. (Not the full truth; I can’t figure out how to tell them in a way that wouldn’t result in awkward questioning.) So this is more of an internal dilemma and rhetorical question than anything else. When I did not respond to her request/demand, she “invaded” my fortress a second time, and penetrated more deeply with her speech and body language. Feeling cornered, I responded (I can’t remember what exactly I said, besides “yes” or “okay mom”) to make her retreat, because I didn’t want to continue the interaction at the time. I just wanted to be content sitting on the steps, watching the insects. Alas, Mom would have me do something else.

In another post we will try to explain the benefits to us, of being able to “go away” into our mind. It can be calming and rejuvenating. But there is also a downside, such as when our thoughts get into a negative, repeating loop. It happens more to Ivan than myself or Athena. We aren’t sure why. That issue is probably worth a post on its own.

Collaborative, Andrea and Athena.

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Reblogged: Shopping Expedition gone Awry

December 16, 2012

Wow. There are so many things wrong in this situation. Talk about deflating! This kind of thing is what many of us autistics experience in daily life. We need to figure out how to educate staff in grocery stores and retail in general, on proper etiquette when interacting with disabled customers who happen to bring friends/support people.

I would love to read suggestions from other self advocates, on how we can educate customer service employees to interact appropriately with autistic people and others with disabilities that might cause them to “appear” less intelligent, for lack of a better expression. Especially those like E who went with a friend, and had the employee talk to her friend rather than directly to her.

My wording is poor, but this has to go out. We have been sitting on this post for a very long time now.

Andrea

The Third Glance

While I know this is really minor compared to some things people go through on a regular basis, and my visible disability is temporary, I just wanted to share a story that happened to me yesterday. Not for reactions, just to point out that things like this happen. All the time.

I’m still on crutches, and as such, need to go with someone to the grocery store. My friend and I have a deal that involves a weekly trip, and we’ve been shopping together for more than a year. I keep him on task (he spaces out a lot, plus, I know where everything in the stores we go to is, and can quote prices, too), and he deals with people for me. It’s a good trade. So anyway, we were on our way out of a store last night, and were about 20 steps away from the register and…

View original post 763 more words

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when we were younger

December 13, 2012

*TRIGGER WARNING FOR BRIEF MENTION OF PHYSICAL VIOLENCE NEAR THE END OF THE POST*

I got the idea to write this from reading a label on a Lean Cuisine entree………”cocine en alto” which is Spanish for “cook on high”. When we were younger, we used to think that “alto” was a language, because we heard a friend of our housekeeper talking about it……..didn’t realize it meant the vocal part she sang in the church choir. I knew she was from a different country so I thought that her language was called Alto.

We had another post about something very similar. It was about Peter Pan and his pixie cohort Tinkerbell. She was dying because she drank Peter’s medicine that Captain Hook had poisoned. Peter asked people to clap so she would get better. Our out-of-body sister Natalie (Not her real name) and I were sitting on the couch watching, and we clapped because we thought Peter was talking to us. Can’t recall ages now. This was definitely more than fifteen years ago.

We (myself Athena and Andrea; though at the time we didn’t know about plurals and DID or even autism) also had other things we liked to do alone. Weather intrigued us quite a lot, so we would go to our room, close the door and then take out our beads and pretend the floor was a weather map. We put clusters of beads on the ground to denote storms. We made bigger and more circular or spirally clusters to denote hurricanes. We called it weather for The Littles. We don’t mean littles as in “insider children”. We meant small people. Very small people. Like toothpick sized. And invisible too.
We didn’t want anyone else to see what we were doing. This was a long time ago, so I don’t know why. Perhaps it was embarrassment? Not sure. We would often close our door in poor Natalie’s face. Well, not literally but I’m sure it felt like that to her. We wanted that alone time. To enter the world of the Littles and tell them what kind of weather to expect for the day.

It was a ritual that happened almost every day, probably around the same time. We cannot remember now, how long it lasted.

When we closed the door on Natalie, she often cried. That made us more annoyed because of sensory aversion to crying. We probably couldn’t understand why she was crying. It didn’t occur to us that she could be upset about not getting attention from Big Sis.

So, she would retaliate, by closing the door on us. I had no clue the events were related. It didn’t make any sense whatsoever at first. And also, there was a sense of “she is doing it to be mean, but I wasn’t.” We certainly felt that she was bullying us, and didn’t think that she might have felt the same way.

I would get upset at her and hit her or sit on her. I didn’t know how else to behave. I was less than ten at the time. We weren’t diagnosed as autistic until much later (we were almost 22).

We are pleased to report that today our relationship with Natalie is very deep and loving. We lift each other up. She doesn’t have as much time to talk to us as she would like, because of work and her own social life. We are also busy with school, especially at this time (end of semester, preparing for final exams, etc.)

This is one of a few posts we plan to write about our childhood.

Andrea and Athena, collaborative

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Managing Meltdowns

December 10, 2012

Information about managing meltdowns

I would love to hear from other autistic people, about what methods work for them, to manage overload and self-regulate levels of stress and emotion! Please share yours in the comments section! Also if you want to respond/comment on some of the ones in this reblogged list, please do!

Thanks

Athena

Raising a Child with Asperger's Syndrome

Note: I apologize for this post being late. I had this post completely finished yesterday afternoon and my internet connection glitched and I lost 50% of this post.

 Reading Gavin Bollard’s article, Adult Meltdowns and Problems of Restraint, prompted me to ask several of my Facebook and Twitter acquaintances the following question:

As adults, how do you anticipate/prevent meltdowns? Or handle the situation post-meltdown?

The subsequent responses on twitter and Facebook were so helpful to me, I wanted to share some of my favorites ideas.

First I wanted to share my favorite definition of a meltdown:

When the sensory and neurological system becomes overwhelmed to the point of loss of control. This can look like rage or a tantrum but it is deeper than that. – Lynne Soraya

There seems to be three parts to meltdown control.

Prediction:

#5 – Know your Triggers. (@Sunfell) The first step to any of this is understanding…

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