Archive for the ‘social issues’ Category

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Reblogged from A Strongheart Moment

December 29, 2012

Please donate to the Leeshore Center. And reblog the original post to spread the word. Thanks!

A Strongheart Moment

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December is upon us, the holiday season has started.  Thanksgiving is over and now the next session of holidays begin.  During this holiday season we give thanks for what we have while at the same time helping those who are less fortunate.  Anyone who has been following my blog since I started in July of 2011 knows that my girls and I spent 5 months living in a domestic violence shelter, The LeeShore Center.

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The LeeShore Center  helped us and others immensely.  They help families and victims of domestic violence 365 days a year.  Last night I made a donation to the center  and I invite my readers to help this marvelous organization.  There is no minimum to donate, they use Paypal so it’s very quick and easy.

Please join me in spreading a little holiday cheer this month.  Help bring some holiday cheer to victims of domestic violence who…

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Some thoughts on Ending one’s life

December 7, 2012

Don’t worry, readers: we aren’t going anywhere.

TRIGGER WARNING FOR MENTION OF SUICIDE!

SPLAT SPLAT SPLAT!

I just finished reading a post by ama about how a doctor said “you are an incompleter” when talking about failed suicide attempts made by the aforementioned blogger. As if completing suicide were some kind of honor that was better than failing to complete it? What an idiot that doctor was!

Alas, the post I was referring to in the beginning no longer exists. The user took down their blog some time ago. This post was actually started a couple of years ago (at least).

Suicide is one of those things that is best left unfinished (meaning someone finds you before you can do it) Or even better, not started at all. I talked to a friend about this topic a while ago, and said friend may well take issue with this post. We don’t agree on everything, which is perfectly okay with us.

We are of the collective opinion that suicide is very hurtful to family members left behind. ( not that my sisters cannot think for themselves. They came to the same conclusion as I did, by different paths.)

However, we are well aware that not everyone is so fortunate, blessed (for fellow Christians) or whatever word you want to use, to be born into a healthy, functional (no major violence or drug or alcohol problems or major trouble with the law-nothing to do with functioning levels) loving family.

But OUR experience is of being born into a loving family; therefore we are not really qualified to talk about other kinds of family experience in first person narrative as if we are living it. This experience is what has shaped our view of suicide, as a most unfortunate final act. We have no intention, with this post, to disparage anyone who has family experience different than our own, or who happens to view suicide differently than we do.

This post was initially inspired many months ago by reading a post we referenced in the opening sentences.

No one should have the misfortune of being called an incompleter by xyr doctor due to a failed suicide attempt.

The original title for this was “Incompleter My Arse” but when I wrote more it just went in a different direction. Which has been the case for many of our recent posts since they were begun many months ago and possibly by another author(either Athena or Andrea)

Ivan

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Lilee-Room to Read

December 1, 2012

I found this one day while browsing through the freshly pressed posts.

This is an excellent organization, and it made me think of a similar organization based in Montana, that doesn’t deal with reading alone, but builds schools in very remote, hard-to-reach areas of the world. It is called the Central Asia Institute

Please share this important post with your followers.

I got another idea from this post also, something related to autistic advocacy, but it’s separate from this so I didn’t want to write it here. Also, the words haven’t come out for it either.

Andrea

portraits of addiction

I will always think of 2007 as the year that changed my life.  I was 25 years old, a two-time college drop-out, and in a mentally and emotionally controlling relationship.  I partied a lot, barely saw my friends or my family and had completely lost focus of who I was and what I wanted to achieve in life.  I went to work and I went home.  I was lost in a spiral of depression I didn’t know how to climb out of, that is assuming, of course, that I could even figure out where to begin.  I had completely lost sight of who I was and what I wanted from my life.  The only time I ever felt any escape from the dark hole I had dug for myself was when I picked up a book and began to read.  No matter what was going on in my life I…

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Ann Coulter Discussion Continues

November 24, 2012

We are very glad that people are still thinking about Ann Coulter’s use of the r-word. Just yesterday I saw that someone had found our blog using the following search phrase: “autistic girl’s letter to Ann Coulter”
We do not know of such a letter, just the one we found and reblogged, written by a young man with Down Syndrome.
Talk is good, as it induces thinking. Now it is time for action.

When we have more time and energy, possibly over either Thanksgiving or (more likely) Winter Break, we will attempt to create a list of bookstores which sell her books, with contact information so that people can call and voice their concerns. We would love some help with that if anyone is up to the task; then it can get done much faster and we can get on with making calls or writing/emailing those bookstores! Seriously, we need to do this. Hitting Ann Coulter where it hurts the most, in her wallet, is the best way to send her and everyone else a message loud and clear: that hurtful and offensive comments do not and will not go unnoticed and unchallenged any longer.

Solidarity, fellow advocates and allies!

Let’s do this!!!!!!

Ivan

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WHAT THE ACTUAL HELL??? Or, Fuck you, OryCon!

November 6, 2012

Wow. So apparently Orycon, a sci-fi convention in Oregon that had scheduled an autism panel WITHOUT AUTISTIC REPRESENTATION, said, after being called out for not having autistic representation, that they would cancel the panel discussion.
The advocate doing the calling-out even explained what the problems were with the panel.

What she got for all her efforts and energy and VALUABLE SPOONS was a fake apology.

Yeah. She spends alot of time and energy and that’s what she got. I don’t really understand the entire situation to be honest, but I know enough to be absolutely outraged.

BUT WAIT, IT GETS BETTER! I couldn’t make this shit up if I tried.

THEY HAD THE FREAKIN PANEL DISCUSSION!

Because of YOU, OryCon organizers, certain advocates will probably need days to recover from their frustration and overload and wasted efforts to explain to you what was wrong and how you could correct the situation.

I don’t believe this shit. OMFG, I’m so freaking angry right now.

But I highly doubt this is the first time something like this has happened in the history of autistic self advocacy.

K, and whoever else made such an effort to reach out to these goons on behalf of autistic self advocates everywhere, I am deeply deeply sorry, that your valuable energy was so shamelessly disrespected.

These people clearly had no appreciation whatsoever of the time, energy and stress you may have gone through in order to advocate for yourselves and the rest of us. But I surely do appreciate it. I would never have known about this if K and others hadn’t blogged about it in the first place.

And yes, I used the word goons to describe the organizers of OryCon. Why? Because they fucking lied about having cancelled the discussion panel. Bullshit they weren’t aware of it happening. Read K’s posts I linked to. All of them.

I hope this gets signal boosted into the stratosphere!

Nothing about us, without us!

Ivan, Andrea, and Athena

 

 

 

 

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Defining Autistic Culture

November 4, 2012

I have been extremely depressed for the last several days. Seasonal Affective Disorder really sucks. Reading posts about autistic self advocates not having a voice in autism discussion panels isn’t helping me feel any better either. Another thing that has been bothering me alot is that there are no articles that I can find online, written about autistic culture. Why is that? I found an abstract in an online database written in a paid subscription thing about the subject, but I couldn’t access the whole thing. I am going to check with the library of my university to see if I can get access to the database through there. Hopefully I can. I am so behind on homework and stuff because of depression and lack of initiative and lack of ability to concentrate. I have a special therapy lamp for my seasonal depression, but because of inability to take initiative for much of anything lately, I haven’t used it even though it’s sitting right next to my bed. This is common for us, to lack initiative or ability to take steps to help ourselves when we are stressed out, overloaded, hungry, etcetera. Yesterday, for example, I went the whole day without eating because I just couldn’t figure out how to motivate myself to get food. I also had a lack of desire to eat because I felt like I didn’t deserve to eat. That’s because of the depression. And I didn’t care. Or at least that’s what I thought at the time. It could be a number of things. I just didn’t have the spoons to figure out what was holding me back from doing things I needed to do. Like eating. And doing my homework. I was in a really weird place mentally. At school last week I felt in a weird dark place also.

Something unrelated-I definitely want to see stuff written by self advocates about autistic culture. I could write about it I suppose but, being a math person and not a writer, I have a lot of trouble with that. I wouldn’t know where to begin. I do think we have a culture. Cultures have traditions and rituals. Autistics have rituals. We have unique methods of communication with each other and with nonautistic people. We have different ways of thinking about things. But I suppose one major difference between autistic culture and other well-defined cultures is that within our culture, because every autistic is different, our culture is more a sum of parts. Of course, every individual within a given culture will be unique (because all individuals are unique of course. Sorry for the Captain Obvious moment there, but as I said before, I do much better with math than writing.)

So all cultures are a sum of their parts in a way. A sum of every individual’s contribution to that culture. I suppose what I am trying to say, albeit not very well, is that autistic culture being the sum of its parts is more obvious than for other cultures, in my opinion. The reason being that we have very different means of thinking about and understanding the world around us. Many cultures have a shared sense of understanding and views of how the world works. Or doesn’t work, whatever the case may be. I would love to see more posts by autistics, about autistic culture. That would help me articulate my own thoughts about autistic culture.

Ivan

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Disabled Girl Jailed in Pakistan

November 4, 2012

Whoa. This is ridiculous and outrageous! As advocates, what can we do, if anything, to help this girl and her family?

At the very least people should write to their elected officials and ask them to speak out about it. We must make our voices heard around the world!

Ivan

cyprusdisabilityforum

Pakistan police have decided to decline requests for bail for the eleven year old Christian girl who is accused of blasphemy on the grounds that releasing her would endanger her life and her family. The young girl is held in a state of shock and has not been able to say much to the police.

Christian human rights groups of Pakistan society are enraged and demand that the girl, who reportedly has Down’s syndrome, is released.

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On the other hand, Muslim groups in Pakistan are now insisting she is burned alive for supposedly burning a Koran.

As a result of the controversy surrounding the case, Pakistan law is under scrutiny for imposing inhumane sentences on Christian citizens. Many Christian families who lived in the same neighbourhood as the young girl have also reportedly fled their homes in fear.

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