Archive for the ‘responses to others’ writings’ Category


From diaryofamom: she’s not a baby

November 27, 2012

This may very well rub some autistic self-determination proponents the wrong way. I was taken aback the first time I read it. Some truths are harder to accept than others. 2 positive things to take away from this:

1) this mom didn’t want to write about it or admit it BUT SHE DID BOTH! There will be time to dissect all the “why she may not have wanted to admit it” later on. I don’t know the reasons. They are her reasons. But I think this is a big step for her and her family. I say this as an autistic person myself.

2) Her other daughter, an NT, pointed it out to her. This girl has ally potential already. Key word is POTENTIAL.

Kudos to DiaryOfAMom for fessing up and writing this. That was a huge step. One that should be recognized.


a diary of a mom


I don’t like this post.

In fact I hate it.

Its content is raw and embarrassing.

But I’m publishing it.

Because I think it matters. 


She was right.

Of course she was right.

That’s why it hurt so much.


That’s why I got so defensive when she said it — and tried to pretend that I didn’t know what she meant.

“Mama,” she said, “you don’t have to talk to her like she’s a baby.”


The words hung in the air — thick, accusatory.

My gut reaction was denial.

“I wasn’t, honey.”

It sounded ridiculous. Like I’d just said that the sky wasn’t blue. But look, Katie, my brow is furrowed as though I’m confused, and I’ve even cocked my head to the side for good measure, so I must not know what you mean.

“Mama,” she said, going along with the game,”ask me the same…

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A Quick Note on Likes

November 9, 2012

We prefer to use the like function to mark posts we want to reblog and add our responses to. The like button saves the post for us so we don’t have to go looking for it. So sometimes when we have finished reblogging and responding to a post, we may choose to “unlike” not because we don’t like the post anymore, but because we are finished responding to it and don’t want to get overwhelmed by the number of posts we “like”. It has nothing to do with whether or not we still like the post. This is just an organizational tool for us to mark posts which we want to reblog and add our own thoughts to, or else link to for reference.



From Kittymama-Spread the word to End the Word(s)

November 2, 2012

More on the issue of using words to hurt people, this time from a slightly different cultural perspective. It says pretty much the same thing. Definitely a good read and well worth sharing!

Thanks to my headmate-sister for finding this. However, autistics are not all unable to lie. They can fall victim to corruption too. Maybe not to the extent of elected officials (but could that also be partly because few if any elected officials are known to be autistic?) yes we are capable of BEING corrupted! It happens all the damn time! But not in the conventional sense. Whenever we are told we can’t do this or that because of our disabilities, we are being corrupted, if we end up BELIEVING those lies. That will be the subject of another post, eventually.

Sorry to Athena for hijacking her reblog. She asked me to finish it for her.

Athena and Ivan

Okasaneko Chronicles

In 2009, at the height of the campaign for the Philippine Presidential Elections, the word that critics used to disparage then-senator-turned-presidential aspirant Benigno Aquino III was “autistic.” You see, Filipinos don’t like using the R word as much as the A word. Call it a cultural difference, but here in the Pearl of the Orient Sea, we like to insult people with the A word.

As a result, I wrote “To Senator Noynoy (An Open Letter to Senator Noynoy Aquino from a Mother of an Autistic Child)” in 2009. This was my answer to the people who liked to abuse the word “autistic’ and I quote:

If being autistic means not being able to lie, then by all means, I should be proud to say I am autistic.

If being autistic means not being able to cheat and rig elections, then call me autistic.

It being autistic means not…

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Seeing the Sparkle in Autism

October 24, 2012

So I read this post again, not exactly sure why I had marked it for reblogging in the first place. I knew there was something about it that definitely warranted a response, and a positive one at that. Some of it is very difficult to read, namely the parts about being in gloom and doom and the “dark side of autism”. That simply does not exist for many autistic people, our system included. But this is the writing of a parent who is gradually coming to see the light, the great potential. This IS a big moment for her son. Her wording may be objectionable in many aspects (note to author: unfortunately many of us self advocates do find things objectionable about parents’ descriptions of their autistic children at times. But please do not take this necessarily as condemnation. It is just a statement of fact. Just listen and reach out. We have reasons, justified or not, for our “harshness” to parents of autistic children as regards their use of words to describe their children. I will attempt to explain this in a separate post.


I call this moment my “number one reason to love autism moment” because, truly, it was the first.  This was the first time I realized there is some crazy magical stuff inside of autism and just when you think you understand it all, it will knock the wind out of you.  Yeah, in the beginning, autism is every bit of 100% scary and overwhelming and your moments of hiding in the bathtub become more plentiful as you try to hide from the thing you don’t understand and the thing that is slowly taking over your life.  It is either a dark pit to fall into or to pull yourself out of.  In that very beginning, there is no light, there is no positive and, clearly, there is no magic or wonder to be found.  It is mostly black and sopping wet from the tears that seem to be continually clouding…

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Reblogged: An Open Letter to Ann Coulter

October 24, 2012

More on the response to Ann Coulter’s insensitive tweet! This letter is amazing! I wouldn’t have been able to write something like this completely devoid of anger and harshness. Whether Ann Coulter understands this letter and takes it seriously doesn’t matter one bit. What is FAR MORE IMPORTANT is that many people are speaking out and responding to these kinds of letters from people who write them. People are talking about this issue and taking a stand. That’s how we can effect change.

Bravo, John!


The World of Special Olympics

The following is a guest post in the form of an open letter from Special Olympics athlete and global messenger John Franklin Stephens to Ann Coulter after this tweet during last night’s Presidential debate.

Dear Ann Coulter,

Come on Ms. Coulter, you aren’t dumb and you aren’t shallow.  So why are you continually using a word like the R-word as an insult?

I’m a 30 year old man with Down syndrome who has struggled with the public’s perception that an intellectual disability means that I am dumb and shallow.  I am not either of those things, but I do process information more slowly than the rest of you.  In fact it has taken me all day to figure out how to respond to your use of the R-word last night.

I thought first of asking whether you meant to describe the President as someone who was bullied as a child…

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“We were all struck autistic…” Really???

March 13, 2010

One or more of us were reading PoopReport, the internet home of the Intellectual Appreciation of Poop Humor, when we came across something very strange indeed.

It came at the tail end of an entertaining story entitled “Barnburner”

It seems a bit far-fetched, that everyone except for the author farted simultaneously, but okay, if he thinks it happened that way, fine. The truth or otherwise, of his story is a separate issue. The reason we’re writing this post at all, is his terribly incorrect and stupid use of the word “autistic” at the very end. What we think he meant to say, is something along the lines of “dumbstruck, speechless, or some other word that would describe such utter surprise as to be temporarily mute.

“Struck autistic” just ain’t it, brother. I (Andrea) found it very idiotic and highly offensive. As did the rest of us. Ivan was laughing because it just sounded so STOOPID. But it’s really not funny at all. It’s just as we said, offensive and dumb. And what was even sillier…….was the flame war that ensued in the comments section of the story when I and someone else pointed out the offensiveness and idiocy of the author’s word choice.

Read them for yourself and find out…..even if you’re not really into stories about scat, you can just skip the story and read the comments.

To quote a great science blogger, Orac….the stupid, it burns. And this time it happened in a barn. (the last sentence is mine, not his)

Andrea the Integral and Ivan


In defence of autism blogger Kathleen Seidel

April 7, 2008

Orac at Respectful Insolence has written this Open Letter

to two journalists, in an attempt to pressure them to defend Kathleen Seidel against a subpoena that would force her to disclose alot of private information about her and her sources and fellow bloggers. More information is contained in the letter which Orac has beautifully written.

The more people view this letter and circulate it through the blogosphere and the Internet, the better.

Anyone stopping by my blog, regardless of your position on autism rights, please do read this, and I hope you will do your part to pressure these two journalists to defend Ms. Seidel against this unfair subpoena. This is a blatant attempt to silence someone who has views counter to those of major organisations with a lot of funding……Autism Speaks, DAN, and others. It’s a fear tactic to attempt to set back progress of the autism rights movement.

Please do your part. Everyone in the right needs a good defence when they cannot defend themselves, by themselves.

Collaborative, Ivan and The Integral

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