Archive for the ‘defence of others’ Category

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Ann Coulter Discussion Continues

November 24, 2012

We are very glad that people are still thinking about Ann Coulter’s use of the r-word. Just yesterday I saw that someone had found our blog using the following search phrase: “autistic girl’s letter to Ann Coulter”
We do not know of such a letter, just the one we found and reblogged, written by a young man with Down Syndrome.
Talk is good, as it induces thinking. Now it is time for action.

When we have more time and energy, possibly over either Thanksgiving or (more likely) Winter Break, we will attempt to create a list of bookstores which sell her books, with contact information so that people can call and voice their concerns. We would love some help with that if anyone is up to the task; then it can get done much faster and we can get on with making calls or writing/emailing those bookstores! Seriously, we need to do this. Hitting Ann Coulter where it hurts the most, in her wallet, is the best way to send her and everyone else a message loud and clear: that hurtful and offensive comments do not and will not go unnoticed and unchallenged any longer.

Solidarity, fellow advocates and allies!

Let’s do this!!!!!!

Ivan

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WHAT THE ACTUAL HELL??? Or, Fuck you, OryCon!

November 6, 2012

Wow. So apparently Orycon, a sci-fi convention in Oregon that had scheduled an autism panel WITHOUT AUTISTIC REPRESENTATION, said, after being called out for not having autistic representation, that they would cancel the panel discussion.
The advocate doing the calling-out even explained what the problems were with the panel.

What she got for all her efforts and energy and VALUABLE SPOONS was a fake apology.

Yeah. She spends alot of time and energy and that’s what she got. I don’t really understand the entire situation to be honest, but I know enough to be absolutely outraged.

BUT WAIT, IT GETS BETTER! I couldn’t make this shit up if I tried.

THEY HAD THE FREAKIN PANEL DISCUSSION!

Because of YOU, OryCon organizers, certain advocates will probably need days to recover from their frustration and overload and wasted efforts to explain to you what was wrong and how you could correct the situation.

I don’t believe this shit. OMFG, I’m so freaking angry right now.

But I highly doubt this is the first time something like this has happened in the history of autistic self advocacy.

K, and whoever else made such an effort to reach out to these goons on behalf of autistic self advocates everywhere, I am deeply deeply sorry, that your valuable energy was so shamelessly disrespected.

These people clearly had no appreciation whatsoever of the time, energy and stress you may have gone through in order to advocate for yourselves and the rest of us. But I surely do appreciate it. I would never have known about this if K and others hadn’t blogged about it in the first place.

And yes, I used the word goons to describe the organizers of OryCon. Why? Because they fucking lied about having cancelled the discussion panel. Bullshit they weren’t aware of it happening. Read K’s posts I linked to. All of them.

I hope this gets signal boosted into the stratosphere!

Nothing about us, without us!

Ivan, Andrea, and Athena

 

 

 

 

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Disabled Girl Jailed in Pakistan

November 4, 2012

Whoa. This is ridiculous and outrageous! As advocates, what can we do, if anything, to help this girl and her family?

At the very least people should write to their elected officials and ask them to speak out about it. We must make our voices heard around the world!

Ivan

cyprusdisabilityforum

Pakistan police have decided to decline requests for bail for the eleven year old Christian girl who is accused of blasphemy on the grounds that releasing her would endanger her life and her family. The young girl is held in a state of shock and has not been able to say much to the police.

Christian human rights groups of Pakistan society are enraged and demand that the girl, who reportedly has Down’s syndrome, is released.

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On the other hand, Muslim groups in Pakistan are now insisting she is burned alive for supposedly burning a Koran.

As a result of the controversy surrounding the case, Pakistan law is under scrutiny for imposing inhumane sentences on Christian citizens. Many Christian families who lived in the same neighbourhood as the young girl have also reportedly fled their homes in fear.

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RIP Amanda Todd

October 14, 2012

Trigger warning for pictures of self harm at the end, and discussion of suicide and bullying and feeling alone

We are too triggered to write anything more about this right now and we don’t know too many details, but this needs to be seen, and blogged about extensively.

NOTE: COMMENTS THAT ATTACK THE CHARACTER OF THIS VICTIM WILL NOT BE TOLERATED.

BULLYING IS NEVER OKAY. PERIOD.

Amanda Todd’s chilling message about bullying

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Something another blogger replied to me

December 21, 2011

I have to disagree with you, too, athenivanidx. The diseases you mentioned (malaria, AIDS, Ebola) are considered pandemic (if you look in the dictionary you’ll see the various definitions of epidemic). And, I think your comment about obesity is insulting. Obesity is a disease and it is not necessarily an acquired condition. For someone who wants to be treated a certain way and referred to in a certain way you should be more sensitive to those types of things.

Oh, and you said you didn’t think autism was a disease like those other things. Here’s the definition of a disease:

“A disorder of structure or function in a human, animal, or plant, esp. one that produces specific signs or symptoms or that affects a specific location and is not simply a direct result of physical injury.”

Autism IS a disease.

I believe the number of children being diagnosed with autism nowadays IS an epidemic. And, regardless of the word used (I’m not going to get into a battle of semantics) this is a major concern for our country and for the world.

I’m the parent of a three-year-old boy diagnosed with autism more than a year a half ago. My wife and I are of the group of people who believe that vaccines played a big part in our son being autistic. If we had the choice to do it again there’s no way we would have let him get the shots at 18-months-old. We have refused any further vaccinations for our son and don’t feel like we are doing a disservice to him. Until the drug companies, the government, and the CDC show honest efforts to make vaccines safe–and are completely transparent about what’s in them– I will live in doubt.

The way they try to force vaccines on us seems to be less about concern for our health and more about profits, control, and other motives. I was forced into getting a booster MMR shot so that I could take a couple classes at a local college. My MMR from when I was a child apparently weakened. At least that’s what they told me. I researched the possible side effects of this shot on an adult and saw that one was a rare chance at sterility. This was at the same time my wife and I were trying to start our family. I took the risk and got the shot but if I would have become sterile would anyone in the drug companies, government, or college have cared? I was an adult and able to speak up for myself…children get no say in these issues and if they don’t have strong, well-informed parents they can be harmed very easily.

I have to make another comment about how you said that people with autism wanted to be referred to as an autistic person and that you were proud of being autistic. I don’t think you should be speaking for all people who are autistic (plus that’s just a label–I have asthma or I’m an asthmatic…I don’t care even way). Also, it’s important to be proud of who you are but not because of an affliction you have. Be proud of being a human being and of being a good person. I’m proud of my son regardless of him being autistic or if he were “typical.” And my son is proud of himself (yes I can tell) and he knows nothing of being autistic.

I’ve read many things written or said by people with autism and they mention “neurodiversity” and “don’t try to cure us” and they often seemed very angry with parents who are trying to help their autistic children. I realize there are probably parents out there who, when told their child is autistic, don’t know how to react to that. They don’t know how to raise them, or treat them, or communicate with them. Some may even be so mentally unstable that they stop loving their child or do harm to their child. I think those are rare but they seem to be the types of people/parents that are talked about most (the public likes to hear bad things and ignore the good). Every one of the parents at my son’s developmental disabilities school are dedicated and loving to their children and their needs as autistics.

I believe it is every parent’s responsibility to do whatever they can to help their child when they are ill or when they face a challenge. The minute my son was diagnosed with autism I knew I would do whatever it took to help him get past it. He has been getting ABA therapy since January of 2007 and he has made much progress. His teachers are optimistic about his chances to go to kindergarten with other kids his age. That is our goal for now. We’ve had only person so far make a negative comment about my son’s prospects for the future (”He’ll never be a lawyer but there are a lot of good trade schools.” ;) and my reaction to that was $&&@*@# that! Never, ever tell me or my son what he can’t do. I believe he can be whatever he wants to be. I love him with all my heart regardless of what he does.

I think it’s a joke that I should be looked at poorly by some autistic people because I want to “cure” my son. As I mentioned, I have asthma. Should my parents have not wanted a cure for me? Should I not take my asthma medicine because it changes “who I really am?” Bull! I’m a well-informed, loving parent and whatever I feel is safe and productive to help my son (and yes, cure him) I will do in a second.

My son has a great personality. He’s fun and smart and loving. I believe he would be that way even if he weren’t autistic and, if anything, his autism holds him back from being those things even moreso. We treat him no differently than if he were “typical.” Communicating with him is obviously our biggest challenge and understanding his stims can be heartbreaking. If he could talk to us I believe he would thank us for helping him get the ABA therapy.

I’m sorry if this comes off as confrontational or angry (or a little off-topic) but I’m tired of a) not getting truthful answers about the vaccination connection to autism and b) being told how to treat my son’s autism.

ETA: another relic from a few years ago. We’d be interested to know what others have to say about this.

all of us

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Injustice never takes a vacation, even if you do

December 18, 2011

In Arles, when we were visiting an old church, there was a gypsy lady outside on the church steps silently begging for spare change, and her daughter was running around in the square by a fountain. There were other children there teasing her, chasing her, and harassing her. Witnessing that injustice made me feel very angry and hurt, for that little girl. She did not choose her life at all, and what little dignity she was seeking out was being robbed and violated by the other children, who were obviously better-off financially than she was. I did not like the way the little girl ran about in the street (and crossing it without appearing to pay attention while doing so) because I was worried that she might be struck by a car or knocked over by someone larger than herself. I would have liked to say some stern words to her tormentors, but I couldn’t, or perhaps I wouldn’t, because my courage failed me in front of the five NT’s, three of them my immediate family members, that I was with. Ivan might have spoken up anyway, but Athena wouldn’t in front of family and friends, because if she did she or Ivan would have gotten lectured about it, and we both detest being lectured to over something like that. If only we weren’t so cowardly in front of NT’s…perhaps it’s not really cowardice at all, but something else that I don’t have the right words to describe. We keep telling ourselves “next time we’ll say something, next time we’ll do this or that even when we’re told otherwise, etc. “ and when next time comes around, we do the same thing we’ve always done: keep our mouth shut or fail to take whatever action we were intending to but refrained from taking. Maybe my lecture to those other children would have fallen on deaf ears, or maybe they would have made fun of me and her both. But at least if I had spoken out, I would have done something I could truly feel proud about.

ETA: To the little gypsy girl: We’re so sorry that we didn’t stand up for you. There’s not much of an excuse…..(this event happened 5 years ago, I had it in my drafts…..)

Andrea the Integral, collaborative

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Please Help This Little Angel

November 17, 2008

Katie Fitch, a three year old from South Carolina, suffers from hepatoblastoma, which is a very rare form of liver cancer. As of her mother’s and sister’s last update, her cancer is no longer responding to chemotherapy. This little darling needs our help! Her parents need funds for her medical care. Whether you are religious or not, please take the time to read her site, set up by her parents, and donate. Her family sent the story to snopes.com already, and the myth-busters there have confirmed the story as TRUE. I know there are many scam artists in cyberspace, so it’s important to determine the veracity of any claim, no matter how much it might pull at your heartstrings. With this in mind, rest assured: this is one hundred percent true. If you don’t want to take my word for it, you can check for yourself. Simply google “katie fitch” and you should find the snopes.com verdict on the story.

Please, help this little girl and her family. She has two sisters, a mom and dad, and pets who all love her dearly.

Please link to this page on your blogs if you have them, or email your friends. You can also link to my post if you like.

Thank you.

The Integral

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